The worst of times into the best of times.

Remember when I said the other night was the worst night of my life? Well it’s been topped.

Her pain was so bad from the stomach distention, I had a new nurse that was just absolutely horrible to me, none of the Doctor teams would return phone calls (if the nurse actually made those phone calls), and on and on.

After 7 hours I finally got what we needed as far as pain but about 30 minutes later her lung decided to go south again and it was the absolute worst it has been and terrifying. Like so terrifying I almost called Jack to tell him to come. Like I thought we might lose her. That’s all I will say about that.

I was alone sobbing by her bedside when one of the nurses gently came beside me and began praying boldly over Laila, our family and the hospital staff. She wasn’t even our nurse. My door was closed. I cry softly. There was no way for her to know that I needed that except by the prompting of the Holy Spirit. Oh and we had never had any chats about our faith with each other before that.

We had an amazing respiratory therapist who helped us and a few hours later she was a different kid again. This is one long emotional roller coaster ride.

Today since then she has been up in her wheelchair, had great stats, needed less pain meds, it’s amazing. We still have a long road ahead of us but this moment I would say is a victory.