Not much to say

The CT showed blockage right at the stoma site. It’s too dangerous to do another surgery right now. Four in two weeks would not be good, not like three in a week and a half was either. So for now they placed an NG tube to drain her stomach which was horrible this time. She fought and fought them and it took more than five tries. They also placed a catheter in her stoma to try to open up the channel but it didn’t seem to help and fell out a few hours later. Another night of her writhing in pain and her cough is back too. I got a little sleep because a friend stayed in the chair pushing the button for me all night.

They just came in and increased her steady rate of fentanyl to try to help her pain.

My baby and I are exhausted and I’m ready to tell them to pull all these stupid tubes out and I’ll just take her home. I know I can’t. I also don’t feel like we are making any progress nor do I see any in sight. I want to be done. But I want her better so I will put on my big girl pants and trudge through another hour, day, week….. Until she is Laila again.

Jeremiah 29:12-14 Then you will call upon me and come and pray to me, and I will hear you. You will seek me and find me, when you seek me with all your heart. I will be found by you, declares the Lord, and I will restore your fortunes and gather you from all the nations and all the places where I have driven you, declares the Lord, and I will bring you back to the place from which I sent you into exile.