Sunday night update :(

Well here I am updating. Wish I had nothing to report except fun with the big kids but not so. Although we did have lots of fun and I’m gonna do a picture post about that tomorrow.

This was the big kiddos getting to see the real Laila for the first time in weeks (through glass). It was so good for them.

I got back this evening and Jack said she had been having bladder accidents all day and all urology kept saying was that it was fine and had the nurse flush the Monti. I made them get the surgeon up here and it turns out the catheter has come out of place. He tried fixing it twice now but may have to put in a few new stitches if this last fix doesn’t work.

I also noticed that her latest, big incision was red and hard. The nurse (a new one) tried to convince me it was just her stomach muscles but I told her to page that surgeon as well. Three hours later he finally came and by that time it was very swollen and he took one look and said they would have to open it up. They numbed and opened the incision back up (bedside, not in the OR) and infection came pouring out. So they will start antibiotics and he left the incision open and we have to change it and pack it twice a day for the next 2-3 weeks. It’s funny when people tell me I should become a nurse. #1 Ain’t nobody got time for that! #2 I pretty much already am, just no paycheck.

The plan was to think about feeding tomorrow after getting an X-ray and probably a contrast study. We’ll see what her main surgeon says when he comes in tomorrow morning now with all of this…. Charlie Brown output has been steady but still water consistency and not a lot of gas. None of it looks any different to me than the last two times we tried to feed her except I was excited that this time would be without a fresh incision…. So much for that.

She’s been more and more alert….. And crabby and whiny. Not sure if she’s just over all this and bored or maybe these other issues have been bothering her more than we know.

So there you have it.

I got to go to church today here in Indy and that was great. God is speaking to me big time about knowing and seeing me and reminding me I’m not forgotten. Here are a few good nuggets I stole off of the notes Emma wrote:

When everything within me says to “escape,” God whispers for me to “endure.”

Prayer is worry redirected. The next time you are tempted to worry, redirect it to God.

Peace isn’t a formula, but found in a person; Jesus Christ.

God does some of His best work in the darkness.

Hebrews 4:14-16 Therefore since we have a great high priest who has passed through the heavens, Jesus the Son of God, let us hold fast to our confession. For we do not have a high priest incapable of sympathizing with our weaknesses, but one who has been tempted in every way just as we are, yet without sin. Therefore let us confidently approach the throne of grace to receive mercy and find grace whenever we need help.

When I tell Jesus I’m hurting… He says “me too.”