Blue glove daddy

Can I just say that I have the best husband in the world? My kids are so blessed with such an amazing, all in dad. Watching him throw on those blue gloves and learn to catheterize Laila and empty her ostomy today made me love him more than I ever thought I could. I know not every guy is all in like he is and I will continue to say all my life how much of a gift he is to me. I am not alone in this and never have been. He is so amazing.

They increased Laila’s feedings to 60ml today. It went…. Ok. Her belly bloated up a bit and they had to delay her last feeding of the day because her stomach wasn’t empty yet from the feeding three hours before. They were eventually able to do it though. Makes me nervous for tomorrow. 60 ml seemed to be pushing her a bit and we need to eventually get to 280. Interested to hear what their plan for tomorrow will be.

I am home now. It is weird. I never thought I would walk back in this house with Laila still at the hospital. There are signs of how loved we are everywhere in this house. The fact that someone had come and cleaned for me, goodie baskets everywhere, a fridge full of food…. We are loved.

The wake for my grandma went well. I was very happy to see my parents and how well they are doing. Tomorrow is the funeral and then I will head back to Indy.

No Easter celebrations for us this weekend although we can celebrate Jesus, the true reason, no matter where we are. Emma already has some ideas cooked up in her head to do some good deeds while we’re there. That’s our Emma :)

We will make the most of each day and be thankful.

1 Thessalonians 5:16-18 Always rejoice, constantly pray, in everything give thanks. For this is God’s will for you in Christ Jesus.