The Insurance Woes…

Ok this is dumb of me to complain about but I’m going to.  Dumb because I know so many people have it way worse and we will probably not have even any deductibles or anything from the hospital stay but I’m still frustrated.

So today I get a call that the antibiotic that they are using to treat the infection is not adequate for the bacteria that is growing from the culture.  The antibiotic they want to use is hard to find because it is usually only used in adults so the pills have to be compounded to be made correctly for Laila.  So our amazing pharmacy calls all over creation to see if they can find anyone who has it but also find out that the insurance doesn’t want to cover it. They will eventually cover it (they usually do) but they make the pharmacy and doctors jump through hoops first to make sure she really needs it. This process can take 48-72 hours. ugh.

Then, I leave a message for the urologist to tell her that the new catheters are working great and the lidocaine is also really helping her be comfortable with the anchored catheter at night.  The nurse tells me that the  samples they gave me of the lidocaine applicator is something only hospitals have and that the catheters they had us try are usually not something insurance will pay for.  So hey there momma, find out there are these great products out there that make life so much easier…. oh but you can’t get them.  What?!?!

Again, I know we are so blessed in so many ways but these things kind of drive me batty sometimes.  And all the phone calls and messages to figure all of it out.  Oh man this girl is so lucky she’s as cute as they come and that we true, madly, deeply adore her ;)

NO vomiting last night!!  Woohoo!  That’s two days of full feedings…. in the last…. month and a half.  Hey, I’ll take it!  She was very gaggy last evening and a few times throughout the night but never ended up getting sick.  She has spiked a fever the past few nights and moaned and cried in her sleep.  Now that I know the infection needs different meds that makes more sense to me.  Last night I ended up sleeping on her bedroom floor most of the night just so I didn’t have to keep getting up and going back and forth.  I’m trying to let Jack get some sleep too since he has to go to work.  She complains that her back hurts and I’m guessing her kidneys are giving her trouble.  when your urine looks like this….

and is pretty much 1/3 blood…. you don’t feel real well.  So it’s Thursday and I’m hoping that insurance gets that authorization through quicker than normal because it could very well be Monday before they approve it.  I’d hate for her to go the weekend without it.  I hate listening to her cry and moan in her sleep.  I ended up giving her Tylenol for the fever and valium for the pain last night and it helped a little.

This was her for most of the morning.  She’s just exhausted.  I am too but I can’t seem to let myself nap when she does.  My mind is going a hundred miles a minute and I can’t shut it off.

Apparently Judy got tuckered out too… oh wait, Old Lady Judy is always asleep ;)

So that’s the adventures of last night and today.  I bet this early post is a nice treat for all you blog stalkers out there ;)  I’m heading back to Celebrate Recovery tonight for the first time since before all of this and I plan to soak up God’s word and free the birds from my mind by sharing my struggles with my sisters in Christ.  There’s a whole lot of “birds” caged up in there as my friend likes to say :)

UPDATE: I got a call that the antibiotic has been approved and there is a pharmacy in merrillville willing to make it tonight. Answered prayer!! Boom!! THAT is a miracle!

Ephesians 3

¹⁶ I pray that out of his glorious riches he may strengthen you with power through his Spirit in your inner being, ¹⁷ so that Christ may dwell in your hearts through faith. And I pray that you, being rooted and established in love, ¹⁸ may have power, together with all the Lord’s holy people, to grasp how wide and long and high and deep is the love of Christ, ¹⁹ and to know this love that surpasses knowledge—that you may be filled to the measure of all the fullness of God.

²⁰ Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us, ²¹ to him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen.