Living the weird life

My life is so weird. I’m in a hospital room for what feels like the billionth time this year, learning new things about different kinds of catheters and sticking them in weird places. Back home my son’s fake eye has popped out and no one knows how to get it back in so we have patched it until Jack or I can get to him.

My life is weird.

In other news, Laila has perked up some today. We still haven’t seen the doctor today so there is no plan at this point. She is still on strictly IVs, no meds or feeding through the g-tube. She did have another X-ray this morning and it looks much better which means we should be avoiding surgery. We placed a large catheter in Charlie (her stoma) we were able to manually decompress her small intestine yesterday. I say we because I helped and this may be a new part of how I have to care for her. Fun.

We have been here so much in the last several months that when we travelled up to our second home on 9East from the ER, the nurse had already labeled Laila’s output containers just for us :) We don’t go anywhere in the hospital without someone knowing Laila. Not sure this is the type of famous someone wants to be but it is definitely nice to have familiar faces and a family of doctors and nurses here that we know care about us.

I have a peace today. I have had a lot of discontentment the past few weeks but there is a peace today. It’s interesting that in the midst of another large trial that this is when the peace would come. God is so good to me like that and I also have to believe that it is the power of prayer. Devotions, songs and studies have all been speaking to me about my thoughts and keeping my eyes focused on God and not my circumstances but I just wanted to wallow and be angry. But not today. Today I’m ok. Man, God loves us. His timing is perfect and so are His ways. And that makes absolutely no sense in my human mind but I’m grateful.

Philippians 4:8-9 8 Finally, brothers and sisters, whatever is true, whatever is noble, whatever is right, whatever is pure, whatever is lovely, whatever is admirable—if anything is excellent or praiseworthy—think about such things. Whatever you have learned or received or heard from me, or seen in me—put it into practice. And the God of peace will be with you.