A kink in the plan

We were home for almost two hours last night and it was time for meds and Laila’s J-tube was stuck. We have had tons of trouble getting her meds in through it and even the nurses at the hospital made several comments. Well last night it “clogged” and would not budge at all.

I may or may not have thrown a fit and went to bed and let daddy deal with it…..

So this morning we loaded up and headed back to Riley AGAIN. It is something that has to be fixed right away because it is how we give her all of her medications. I’ve been asking them to switch her meds to IV through the central line but they tell me no.

She was taken to pre-op and I stayed in there while they took her into the OR to check it out. Turns out the way her channel is angled through her skin it kind of points upward and so the tube has to go up and then curve to go back down and into her intestines. Well it naturally wants to curl back up into her stomach and when it does that it kinks. They changed it out and replaced it but said this will probably continue to happen and have to be fixed. Yippee. I think I might buy a limo and a driver for all these trips and we can make ice cream sundaes and drink wine on the way back and forth ;)

If I don’t laugh, I’ll cry. Here’s to staying out of the hospital for at least a week this time… maybe even through Thanksgiving!

At least I had a good reason to grab my first red holiday cup at Starbucks on the way home this afternoon. Mmmmm, skinny peppermint mocha!