One of the things that made us the most sad about having the surgery was that Laila would not be able to fart anymore. It was it was pretty funny to get her laughing hard enough that she would actually pass gas. Yes I know we are a bunch of weirdos. Well not to worry, Charlie makes the funniest noises I think I’ve ever heard and there’s no controlling that rascal so the most hilarious time is when the nurse is down checking her incision and all the sudden there’s a toot in her face!!
Yesterday she did pretty good until the late afternoon/evening. Her belly started bloating up again and she started having the waves of pain and we pretty much had that going on up until now. Charlie is having output and I’ve been checking her belly and burping her G-tube before each feeding and it all seems like it is gas pain to me. We stopped the midnight feeding and only did a tiny bit at the 3 AM one because she was in so much pain but have restarted back to 45 ML this morning. I’m having to press the pain pump every single time the light turns on which is every 15 minutes so of course no sleep for this mama again last night. Depending on how she does, they want to push her to 90 ML every three hours today. We are asking them to order a prescription for medicine that should hopefully help with the gas. We will seeā¦
Psalm 111:10AMP The reverent fear of the Lord is the beginning [the prerequisite, the absolute essential, the alphabet] of wisdom; A good understanding and a teachable heart are possessed by all those who do the will of the Lord;His praise endures forever.
Her lungs are great! She has been staying at 98 even when she’s sleeping with her mouth open.
Urology says they are going to take out the urethra catheter today but they also said that yesterday so we’ll see. I feel like I say “we’ll see” a lot. The Monti hasn’t been putting out much urine but they say it will pick up once the urethra cath is out.
The latest incision has drain in it that hasn’t really done much since the day after surgery and they had said they would take it out today but then yesterday it had a ton of drainage (insert dry heave) so they will leave it in for now.
As for me…. I’m…. meh… Ok I guess. I would say I’m ready to be home but I honestly don’t know how I feel. I for sure want to be with Jack and the other kids but coming home will definitely be a change. The new normal will come but really at this point I still don’t know what that will even look like or when it will be. The past 17 days have all flooded together. 17. Wow. My brain is for sure gonna need some adjustment time whenever we get to come home.
We are thankful for FaceTime! There aren’t many smiles for me but she for sure gives then to Jack and the kids when she sees them on the screen :)